Traveling,with,Medical,disabil health Traveling with Medical disabilities
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Traveling America-ful with amedical disability can be challenging, but it is worth the effort you make tofinally have a successful, fun filled vacation.My wife and I were lookingforward to my retirement. My wife had retired from her Licensed Therapistpractice already and she was just waiting for me to make my retirementofficial. Our kids were grown and gone and we were looking forward to just pickingup for weeks at a time on one of our spontaneous acts and traveling across thiscountry of ours. We had upgraded our timeshare to accommodate our dream oftraveling America.However, strange things happen onthe way to life. About 6 months before my official retirement my wife wasdiagnosed with End Stage Renal Disease (ESRD). On August 4, 2006 she began a schedule of 3-day a weekdialysis treatment at the Mayo Clinic. Each dialysis treatment is at least 4hours long.We had a tough time trying tomake sense of what was happening. Why was this happening to us in the prime ofour lives? How could we possibly take trips with a regimen of these 3-day aweek 4 hour dialysis treatments (Monday, Wednesday and Friday)? There was atleast 1 day between treatments and no more than 2 days (Saturday and Sunday).Needless to say we spent some time with our therapists and getting in touchwith our spiritual side.I think I was more stressed thanmy wife. She insisted that I get out, do something. I normally fish or try toplay golf, but I thought I would try to do something creative. So I wrote a fewlyrics (got them copyrighted) and thought about creating a website that wouldallow visitors to tell other visitors about their travel experiences.Please visit http://www.America-ful.com TravelAmerica-ful advisory and tipsIf we wanted to do traveling ofany kind while she is undergoing dialysis we would have some road blocks toovercome. For instance:Becauseshe had been placed on the kidney transplant list, in the event of an availablekidney match (I am not a match to donate my kidney to my wife) we had to beable to get back to the kidney transplant unit within 2-3 hours after we arecontacted.Not all dialysisunits were the same some were cleaner than others (the fear of infection isalways a consideration). Mayo has one of the best (if not the best) dialysisunits in America.Not consideringthe 2-3 hours window we could only be away for no more than 2 days because ofthe dialysis schedule. We could probably stretch it for another day, but thatwould be putting additional risk into the equation. We were not willing to dothat.But, we were determined totravel. We started out by taking little excursions of one day leave Saturdaymorning and returning Sunday morning. Then we extended our travel time fromSaturday morning and returning Monday morning to get her to her Monday dialysistreatment. Next, we began leaving on Friday evening after her dialysistreatment she was normally very tired right after her treatment andabsolutely famished. So, I would prepare her a meal (she had some foodrestrictions) and she would eat it in the car as we drove to wherever we weregoing and then take a nap.Next the big one! My wife saidWhy not plan a trip for one month? I was not as sure of this as she was. Mywife spoke with her physician and then worked with the Mayo Clinic SocialWorkers for several months to line up dialysis units in various states up theNortheast coast (Washington Area, New York City Area, Atlanta Area and New London, Connecticut Area).Through careful planning andcoordination with the Mayo Clinic Social Worker we were able to schedule 12dialysis treatments over the 1 month period in 4 different states. My wife is amaster at establishing relationships with new people and she was able to dothat in each of the different dialysis locations without major incidents.Getting out was absolutelywonderful. We are from New York and it was great getting back into the hustle-bustlefor a few days. Although, my wife could not get as much activity as she wouldhave normally, she thoroughly enjoyed herself. As did I.Our experience has led us tooffer a few suggestions to those who might be holding back on traveling becauseof your own medical disability.1. Discuss your plans with your physician2. Work with the resources available to you SocialWorkers, Travel Agents, etc. 3. Have alternate plans if you run out of medication; ifyour condition worsens, etc.4. Plan, plan, plan5. EnjoyTravel America-ful and share yourexperiences with friends, strangers and family.Have an America-ful day.
Traveling,with,Medical,disabil